The Case for Braille

Thanks to the luscious Felicia Day and her Facebook followers, I have just discovered 64 Oz Games. This is a small company creating Braille add-ons for board- and card-games. As well as bringing attention to the service, I wanted to share this particular post about why Braille is the best tool for VIP access to printed materials. It also suggests that the more Braille is available, the more VIPs will learn to use it. This is something I think really needs to be promoted.

In Ireland, services for the visually impaired are still largely constructed on a medical model. I got totally fed up of being encouraged to use my “residual vision”. The assumption was of acquired sight los, and that it was better to be as “normal” as possible, not giving in to the blindness label. This is very close to the approach of doctors and physiotherapists suggesting anything rather than using a wheelchair. That’s even if not using a wheelchair makes you so exhausted and pain-ridden that your life becomes a round of therapy, exercise and pain management, with nothing else to give your life actual meaning. Sure, I could use the vision I have, and take 2 hours to read one page of print, then have to rest for days before reading the next page. I’d much rather read in a non-visual format, using my “residual vision” to appreciate how the sunset looks this evening.

Anyway, Here’s the blog post!

Why Such A Focus on Braille? – 64 oz games

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Hospitality?

It has been said more than once that a hospital is no place for a sick person.  But it is the kind of place one might expect to be relatively accessible, given the numbers of people being moved around the building on trolleys and in wheelchairs.  Oh, the naivity of such an expectation!

Last Wednesday, I was at the outpatients department in Sligo General Hospital for an appointment with a geneticist.  Sligo is one of the better hospitals in the country, serving a geographically vast and disparate population.  It is desperately trying to hold onto its recently acquired cancer care services, so that people in North Donegal needing daily radiotherapy treatment or regular and debilitating chemotherapy don’t have to make a 6-hour journey to get to this treatment, never mind the 6-hour return journey.

Part 1: The Front Door

So, back to my jaunt last Wednesday.  The hour-long car-journey left me very stiff and sore as usual, and I had BOTH my PA’s with me – one to drive and one to push the chair!  We arrived at the Outpatients main door, which opens straight into a cafe area.  Unlike the main doors of the hospital, these were two sets of heavy manual double-doors.  The second door of each set had to be unlocked and held open by passing cafe staff, my two PAs and other hospital visitors.  Having swerved and ducked under the arms of this team of door-holders, I find myself in the care, facing a table and chairs, with a rack for trays on my left and an approximately 2-foot wide gap to manoeuvre myself, my chair and my guide-dog through.  It was like some bizarre stunt-wheelchair-rider obstacle course.  A couple of chairs, tables and “Danger; Slippery When Wet” signs were kicked aside to allow me ingress to the main hospital.
Whew!  One obstacle course complete, several more to encounter.

 

Part 2: Waiting Under the Stairs

My appointment letter instructed me to make my way to “Waiting Area 5”.  This involved registering at a very flimsy desk which was akin to a street stall with comparable facilities.  Naturally, it had a counter level which was over my head at wheelchair height, so I jammed myself between the side of the desk and a row of seats for waiting patients.  This also meant blocking the main access channel to a number of clinics and offices, so everyone who waited to pass had a great chance to ignore the sign on my guide dog saying “Please don’t distract me, I’m working” – petting her, talking loudly about her without any reference either to me or to the fact of her being a WORKING dog.
We were directed to wait in a cramped space that felt like a cupboard under the stairs.  It included some toilets, none of which would accomodate a wheelchair, and one of which had no way to lock or keep closed from the inside.  We were right beside an emergency exit which was directly opposite the front door we had squeezed through.  No way of leaving that way without setting off alarms, though.The only space I could really wait in my chair was directly in front of a door to an office.  Although this didn’t prove a problem, it was a great excuse for the excitable nurse that came through to make fools of her and me.

 

Part 3: Over-excited Nurse

Human beings, in any given situation, can be the greatest hurdle to accessibility.  In particular, with guiding or assistance dogs, certain people get transfixed by the dog and their brain stops working.  One such was a random nurse who passed through where we were waiting.  The usual squealing and gooing ensued, the getting down on all fours to let the dog lick her face…. and then she went into her little clinic room to treat a BABY.  No apparent washing of hands, though I’m (fairly) confident she would have worn gloves.
As she came back through, she noticed that I was parked in front of an office door.  She knocked on the door and poked her head around it.  “Just to let you know, there’s a…. a PET out here; just so you don’t step on his tail”.  She did NOT say: “Just wanted to let you know there’s a woman in a wheelchair in this waiting area.  There’s nowhere else to fit her wheelchair, and she has a guide-dog here too.”  That would have been helpful.

 

Part 4: Blood in the Stairwell


After a very interesting consultation with a wonderful geneticist, I went down the corridor to have some blood drawn for genetic analysis.  The bloods room seemed to be two rooms with a connecting door, access to which was via a narrow passageway at the foot of a flight of stairs.  I had to go straight through the corridor past the stairs in order to turn my wheelchair, then back along the corridor to the entrance.  There was a row of seats along this corridor which meant I had to wait in the space directly in front of the door.  There was no way of bringing my guide dog in, so my PA kept her company outside while I had genetic material extracted from my arm to be kept on record indefinitely.

 

Interlude: A Reflection

I realised that I have no problem with my DNA being kept on record indefinitely for scientific research, health issues and future historians or anthropologists.  Just as long as NO government agencies or Justice powers have any access!

 

Part 5: An Unfortunate Potted Plant

I took the opportunity to visit the Day Services section of the hospital which houses the Pain Clinic.  Not for an appointment, but to see if there was any news about my referral to Bath Rheumatology Hospital for tests.  I had been on the system in Bath since last June / July (about 8 months), and for most of that time, their administrators were waiting for an E112 form from the HSE to pay for my treatment before they issued an appointment date.  Meanwhile, the HSE were patiently (pun kind of intended) waiting for an appointment date from Bath before issueing the E112 form.  After about 6 months of me trying to find out who to ring and talk to to move things along, I figured out that this was the impasse and it started moving again.  NOTE: My pain specialist, his secretary, the administrators in Bath Hospital, the HSE office in charge of issueing E112s: NONE of these people, with whatever resources they have, and whatever their job description, noticed that this was what was holding up my best chance of a diagnosis for my crippling pain condition.
SO I went up to Day Services, which again has a counter height that extends above my head when I’m in the wheelchair.  To communicate with the staff meant squeezing in between the side of the desk and the first row of seats for waiting people.  After talking to these good people, I backed out to wait.  There was (maybe still is) a very unfortunate potted plant which just got repeatedly battered by my chair no matter how I tried to manoeuvre.  I just gave up and stayed in the middle of the corridor as usual.  The waiting area was thankfully very quiet.

 

Epilogue

And the pain clinic secretary went and rang Bath and was able to give me my appointment date!!  I’ll be admitted on Sunday 15th March for 3 (more likely 5) days.  Now for the fun of international travel in a wheelchair!!

Today’s Subjective Rating:  Grimly Amusing